Spinal Muscular Atrophy Fundraiser
Stop by and see Face To Face Solutions at Throwbacks and support this very worthwhile cause! Fun for the entire Family!
Spaghetti Dinner, Raffles, Guitar Hero Contest, and other games and prizes!
Host: Terisa Syvertsen, Melissa Wiegele
Type: Causes - Fundraiser
Date: Saturday, April 18, 2009 Time: 3:00pm - 6:00pm
Location: Throwbacks
Street: 1690 Woodlane Drive City/Town: Woodbury, MN
Email: MelissaWiegele@aol.com, tesyvertsen@gmail.com
Hey everyone,
Please read the information provided below on spinal muscular atrophy. It would be great if you could come to Throwbacks on April 18th from 3:00 to 6:00 and participate in all the events to raise money for three Woodbury families who have children with SMA.
Tickets are $10.00 per adult and $5.00 per student
We are also looking for raffle prizes so if you can donate any or know of anyone that may be able to, please let me know. These children and their families have a great deal of medical costs that continue to grow as they get older, including constant home repairs and medical equipment. Hopefully we can raise some money to make a difference in their lives. The children and families have personally touched my life, hopefully we can touch their lives by reaching out in a time of need. Thank you everyone! God Bless!
A special thanks to Joe and Missy Weigele who have been a great help to me in putting this together - Please see Missy's message below!
Hey Guys, I really wanted to send this out in hopes that you all will attend. It is a benefit on April 18th, 2009 for Spinal Muscular Atrophy (SMA). These four kids are all from Woodbury, Minnesota ages 8 months to 7 years old and bound to a wheelchair. These families go through so much to attempt at a normal life, but the costs of there daily life are immense. The cost for a lift is around $18,000 and a wheelchair is close to $30,000. I have enclosed a flyer that has all the benefit information and also below I have some info on SMA. I really hope you all will take a look. If anyone knows of any companies that would like to donate as well that would be amazing! We really would like to give these families all we can. Thank you guys so much and we hope to see you there.
Missy and Joe Wiegele
What is Spinal Muscular Atrophy?Spinal Muscular Atrophy (SMA) Types I, II, and III belong to a group of hereditary diseases that cause weakness and wasting of the voluntary muscles in the arms and legs of infants and children. The disorders are caused by an abnormal or missing gene known as the survival motor neuron gene (SMN1), which is responsible for the production of a protein essential to motor neurons. Without this protein, lower motor neurons in the spinal cord degenerate and die. The type of SMA (I, II, or III) is determined by the age of onset and the severity of symptoms. Type I (also known as Werdnig-Hoffman disease, or infantile-onset SMA) is evident at birth or within the first few months. Symptoms include floppy limbs and trunk, feeble movements of the arms and legs, swallowing difficulties, a weak sucking reflex, and impaired breathing. Type II (also known as juvenile SMA, intermediate SMA, or chronic SMA, has an onset between 6 and 18 months. Legs tend to be more impaired than arms. Children with Type II are usually able to sit without support if placed in position. Some may be able to stand or walk with help. Type III (also called Wolhlfart-Kugelberg-Welander disease, or mild SMA) can begin as early as the toddler years or as late as adolescence. Children can stand alone and walk, but may have difficulty getting up from a sitting position.
Hey everyone,
Please read the information provided below on spinal muscular atrophy. It would be great if you could come to Throwbacks on April 18th from 3:00 to 6:00 and participate in all the events to raise money for three Woodbury families who have children with SMA.
Tickets are $10.00 per adult and $5.00 per student
We are also looking for raffle prizes so if you can donate any or know of anyone that may be able to, please let me know. These children and their families have a great deal of medical costs that continue to grow as they get older, including constant home repairs and medical equipment. Hopefully we can raise some money to make a difference in their lives. The children and families have personally touched my life, hopefully we can touch their lives by reaching out in a time of need. Thank you everyone! God Bless!
A special thanks to Joe and Missy Weigele who have been a great help to me in putting this together - Please see Missy's message below!
Hey Guys, I really wanted to send this out in hopes that you all will attend. It is a benefit on April 18th, 2009 for Spinal Muscular Atrophy (SMA). These four kids are all from Woodbury, Minnesota ages 8 months to 7 years old and bound to a wheelchair. These families go through so much to attempt at a normal life, but the costs of there daily life are immense. The cost for a lift is around $18,000 and a wheelchair is close to $30,000. I have enclosed a flyer that has all the benefit information and also below I have some info on SMA. I really hope you all will take a look. If anyone knows of any companies that would like to donate as well that would be amazing! We really would like to give these families all we can. Thank you guys so much and we hope to see you there.
Missy and Joe Wiegele
What is Spinal Muscular Atrophy?Spinal Muscular Atrophy (SMA) Types I, II, and III belong to a group of hereditary diseases that cause weakness and wasting of the voluntary muscles in the arms and legs of infants and children. The disorders are caused by an abnormal or missing gene known as the survival motor neuron gene (SMN1), which is responsible for the production of a protein essential to motor neurons. Without this protein, lower motor neurons in the spinal cord degenerate and die. The type of SMA (I, II, or III) is determined by the age of onset and the severity of symptoms. Type I (also known as Werdnig-Hoffman disease, or infantile-onset SMA) is evident at birth or within the first few months. Symptoms include floppy limbs and trunk, feeble movements of the arms and legs, swallowing difficulties, a weak sucking reflex, and impaired breathing. Type II (also known as juvenile SMA, intermediate SMA, or chronic SMA, has an onset between 6 and 18 months. Legs tend to be more impaired than arms. Children with Type II are usually able to sit without support if placed in position. Some may be able to stand or walk with help. Type III (also called Wolhlfart-Kugelberg-Welander disease, or mild SMA) can begin as early as the toddler years or as late as adolescence. Children can stand alone and walk, but may have difficulty getting up from a sitting position.
IF ARE UNABLE TO ATTEND AND WOULD LIKE TO MAKE A DONATION,
PLEASE SEND TO:
WESTERN BANKATTN: BRYCE, SYDNEY, BEN BENEFIT FUND
WESTERN BANKATTN: BRYCE, SYDNEY, BEN BENEFIT FUND
663 UNIVERSITY AVE WST. PAUL, MN 55104
CHECKS CAN BE WRITTEN TO:BRYCE MADSEN BENEFIT FUND; ORSYDNEY GUSTAFSON BENEFIT FUND; ORBEN ANCO BENEFIT FUND(YOU CAN PICK ONE FOR THE SAKE OF CHECK SPACE!)
CHECKS CAN BE WRITTEN TO:BRYCE MADSEN BENEFIT FUND; ORSYDNEY GUSTAFSON BENEFIT FUND; ORBEN ANCO BENEFIT FUND(YOU CAN PICK ONE FOR THE SAKE OF CHECK SPACE!)
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